What does the ACNR involve?
Clinic and at home assessments
You will be asked to:
- Complete some assessments during your routine clinic appointments.
- Complete health questionnaires online every six months.
Joining is completely voluntary.
Participate in research
- Enrolling in the registry may make it easier for you to participate in relevant CIDP research, including clinical trials.
- If you agree, the Australian CIDP National Registry team may contact you with future research opportunities.
Why join the ACNR?
By participating, together we will:
- Improve knowledge about people with CIDP in Australia.
- Facilitate research into better care and treatment approaches.
How to join the ACNR
- Talk to your Neurologist/clinical team and let them know you would like to be involved, or
- Contact the registry team directly at ACNR@sydney.edu.au and they will contact your doctor about you taking part.