Registry Overview

Chronic inflammatory demyelinating polyneuropathy (CIDP) is an immune-mediated neuropathy, characterised by an abnormal immune response to peripheral nerve components, producing progressive weakness, sensory loss, and significant functional disability.

An observational registry is a database that collects health-related information on individuals diagnosed with particular medical conditions.

The Australian CIDP National Registry (ACNR) is an Australian patient registry for people who have been diagnosed with CIDP, or a related condition. The Registry will collect health information about people diagnosed with CIDP or related conditions.

Longitudinal data, comprising demographic and clinical information, will be systematically collected and entered into the Registry database. This will include information on CIDP symptoms, history, management, clinical course, and the burden of disease experienced by participants diagnosed with CIDP.

The overall aims of the ACNR are to capture treatment information and evaluate patient outcomes and phenotypes, develop a research resource, and identify participants for future clinical trials. Therefore, the Registry will provide critical information about clinical practice, patient outcomes, and treatment effectiveness of CIDP and related conditions.

This ACNR provides a way for the medical and patient community to learn more about CIDP and related conditions. The sharing of this information is intended to improve the lives of people with CIDP.

The ACNR provides a highly secure and Australian-based platform to facilitate research.